gingerjon Posted May 29, 2018 Share Posted May 29, 2018 10 minutes ago, JohnM said: Damn. Got stopped by the guards at the border. Spent last week in Grimsby Hospital and now in Boston Pilgrim. Looks like leaky heart valve might need attention but that's not confirmed yet. Still trying to stabilise heartbeat and clear lungs out. ######! Have they done the tried and tested TRL method of hitting the problem part with a hammer? Build a man a fire, and he'll be warm for a day. Set a man on fire, and he'll be warm for the rest of his life. (Terry Pratchett) Link to comment Share on other sites More sharing options...
Griff9of13 Posted May 29, 2018 Share Posted May 29, 2018 12 minutes ago, gingerjon said: Have they done the tried and tested TRL method of hitting the problem part with a hammer? Or the other standard TRL advice, switching it off and back on again?* * Friend of mine has actually had that done, but that was to try to stop his arrhythmia. "it is a well known fact that those people who most want to rule people are, ipso facto, those least suited to do it." Link to comment Share on other sites More sharing options...
JohnM Posted May 29, 2018 Author Share Posted May 29, 2018 No cardioversion as yet! Link to comment Share on other sites More sharing options...
Spidey Posted May 29, 2018 Share Posted May 29, 2018 Bloody hell, hopefully they get you sorted quickly Link to comment Share on other sites More sharing options...
tonyXIII Posted May 29, 2018 Share Posted May 29, 2018 Best wishes to a Wigan fan from a Saford fan. Seriously, rugby is irrelevant. Get well soon. (I might need another lift from Craven Park to Paragon sometime) Rethymno Rugby League Appreciation Society Founder (and, so far, only) member. Link to comment Share on other sites More sharing options...
MattSantos Posted May 30, 2018 Share Posted May 30, 2018 Ive an absolutely beauty of a cut/wound on my shin, multiple stitches. In and out of the hospital in 30 mins. Running the Rob Burrow marathon to raise money for the My Name'5 Doddie foundation: https://www.justgiving.com/fundraising/ben-dyas Link to comment Share on other sites More sharing options...
JohnM Posted May 30, 2018 Author Share Posted May 30, 2018 Now in Boston Pilgrim. Progress being made. Cardiologist putting it all down to a faulty heart valve. More investigations a and im not leaving until diagnosis complete. Decided to go private. Sid's Garage under the Coronation St arches has put in a low quote for valve reseating and grinding! Link to comment Share on other sites More sharing options...
ckn Posted May 30, 2018 Share Posted May 30, 2018 13 minutes ago, JohnM said: Now in Boston Pilgrim. Progress being made. Cardiologist putting it all down to a faulty heart valve. More investigations a and im not leaving until diagnosis complete. Decided to go private. Sid's Garage under the Coronation St arches has put in a low quote for valve reseating and grinding! May I recommend that you forward an email to Jeremy Hunt with a link to your profile here, your steadfast defence of the Tories has done a better job than 99% of Tory MPs and surely deserves to get a more exclusive sort of treatment reserved for government ministers and royalty. "When in deadly danger, when beset by doubt; run in little circles, wave your arms and shout" Link to comment Share on other sites More sharing options...
JohnM Posted May 31, 2018 Author Share Posted May 31, 2018 8 hours ago, ckn said: May I recommend that you forward an email to Jeremy Hunt with a link to your profile here, your steadfast defence of the Tories has done a better job than 99% of Tory MPs and surely deserves to get a more exclusive sort of treatment reserved for government ministers and royalty. Oh dear. Give us the gift to see ourselves as others see us. Link to comment Share on other sites More sharing options...
tonyXIII Posted May 31, 2018 Share Posted May 31, 2018 10 hours ago, JohnM said: Now in Boston Pilgrim. Progress being made. Cardiologist putting it all down to a faulty heart valve. More investigations a and im not leaving until diagnosis complete. Decided to go private. Sid's Garage under the Coronation St arches has put in a low quote for valve reseating and grinding! Whether it's Boston Pilgrim, Sid's garage or Hope Hospital, just get well as soon as feasible. Rethymno Rugby League Appreciation Society Founder (and, so far, only) member. Link to comment Share on other sites More sharing options...
gingerjon Posted May 31, 2018 Share Posted May 31, 2018 10 hours ago, JohnM said: Now in Boston Pilgrim. Progress being made. Cardiologist putting it all down to a faulty heart valve. More investigations a and im not leaving until diagnosis complete. Decided to go private. Sid's Garage under the Coronation St arches has put in a low quote for valve reseating and grinding! As much as possible stick to your guns on this. A friend was discharged following a 'cardiac episode' (severe) a few weeks ago but because he was by himself he left without really knowing what had happened nor what the future could hold - and now he's discharged the somewhat stretched services here don't have time to go back and talk to him. Build a man a fire, and he'll be warm for a day. Set a man on fire, and he'll be warm for the rest of his life. (Terry Pratchett) Link to comment Share on other sites More sharing options...
JohnM Posted June 4, 2018 Author Share Posted June 4, 2018 Discharged on Friday afternoon. Various medications and doses decided and administered and vital signs stabilised. Pulse still irregular but under control. Now awaiting outpatient TOE...transaesophagus echocardiogram so they can examine the faulty mitral valve and decide what to do, ranging from nothing , through repair, to replacement. Discharge notes state atrial fibrilation, hypertension, congestive cardiac failure and mitral regurgitation. Lincoln and Grimsby hospitals (different groups) liasing to get earliest TOE appointment so they can sedste me and stuff an ultrasound tranducer down my gullet. Discharge notes also note this is was my fourth admission. Im generally ok for day to day stuff, strolling etc. but any level of physical activity leaves me short of breath. Can watch games on TV, though. Link to comment Share on other sites More sharing options...
Phil Posted June 4, 2018 Share Posted June 4, 2018 Mitral regurgitation sounds particularly gross "Freedom without socialism is privilege and injustice, socialism without freedom is slavery and brutality" - Mikhail Bakunin Link to comment Share on other sites More sharing options...
JohnM Posted June 4, 2018 Author Share Posted June 4, 2018 Feels it, too! Link to comment Share on other sites More sharing options...
Griff9of13 Posted June 4, 2018 Share Posted June 4, 2018 1 hour ago, JohnM said: Can watch games on TV, though That may not have been very beneficial to your health. "it is a well known fact that those people who most want to rule people are, ipso facto, those least suited to do it." Link to comment Share on other sites More sharing options...
gingerjon Posted June 4, 2018 Share Posted June 4, 2018 2 hours ago, JohnM said: Discharged on Friday afternoon. Various medications and doses decided and administered and vital signs stabilised. Pulse still irregular but under control. Now awaiting outpatient TOE...transaesophagus echocardiogram so they can examine the faulty mitral valve and decide what to do, ranging from nothing , through repair, to replacement. Discharge notes state atrial fibrilation, hypertension, congestive cardiac failure and mitral regurgitation. Lincoln and Grimsby hospitals (different groups) liasing to get earliest TOE appointment so they can sedste me and stuff an ultrasound tranducer down my gullet. Discharge notes also note this is was my fourth admission. Im generally ok for day to day stuff, strolling etc. but any level of physical activity leaves me short of breath. Can watch games on TV, though. You don't do things by halves, do you? Keep on keeping on. Build a man a fire, and he'll be warm for a day. Set a man on fire, and he'll be warm for the rest of his life. (Terry Pratchett) Link to comment Share on other sites More sharing options...
ckn Posted June 11, 2018 Share Posted June 11, 2018 On 6/4/2018 at 7:23 AM, JohnM said: Discharged on Friday afternoon. Various medications and doses decided and administered and vital signs stabilised. Pulse still irregular but under control. Now awaiting outpatient TOE...transaesophagus echocardiogram so they can examine the faulty mitral valve and decide what to do, ranging from nothing , through repair, to replacement. Discharge notes state atrial fibrilation, hypertension, congestive cardiac failure and mitral regurgitation. Lincoln and Grimsby hospitals (different groups) liasing to get earliest TOE appointment so they can sedste me and stuff an ultrasound tranducer down my gullet. Discharge notes also note this is was my fourth admission. Im generally ok for day to day stuff, strolling etc. but any level of physical activity leaves me short of breath. Can watch games on TV, though. My morning breakfast routine includes scanning through the recent news and press releases on stuff around my work. I was interested in reading this innovative work around mitral regurgitation at Barts Heart Centre in London. "When in deadly danger, when beset by doubt; run in little circles, wave your arms and shout" Link to comment Share on other sites More sharing options...
JohnM Posted June 11, 2018 Author Share Posted June 11, 2018 Read with interest and rising concern. Today I shall be mainly a sedated outpatient at Boston Pilgrim as they carry out a TOE this afternoon. The paperwork they sent me warns me thst because of the sedation, I must not make any major decisions or sign any documents until 24 hours after the scan. Link to comment Share on other sites More sharing options...
gingerjon Posted June 11, 2018 Share Posted June 11, 2018 44 minutes ago, JohnM said: Read with interest and rising concern. Today I shall be mainly a sedated outpatient at Boston Pilgrim as they carry out a TOE this afternoon. The paperwork they sent me warns me thst because of the sedation, I must not make any major decisions or sign any documents until 24 hours after the scan. The purchase of this beautiful bridge I have right here is not a major decision and in these modern times no signature is required. Just your bank details and a hearty wave of agreement. There you go. All sorted. (Good luck, hope it all goes well.) Build a man a fire, and he'll be warm for a day. Set a man on fire, and he'll be warm for the rest of his life. (Terry Pratchett) Link to comment Share on other sites More sharing options...
JohnM Posted July 6, 2018 Author Share Posted July 6, 2018 Update: I have an appointment last week in July with the Consultant Cardiologist at United Lincs Hospitals to " be reviewed urgently with consideration of work-up for mitral valve repair." Questions are, if anyone knows the answers 1. How do I find out if ULH are any good at this stuff - up to date info.? 2. How do I break out of the tram lines I'm stuck in so I can get the job done at Glenfield in Leicester or other such centre of excellence. 3. Planning to see my GP next week to see what he thinks, but it would be nice to take some supporting evidence with me. If you've noticed the Internet slowing down recently, it's because I have been using it in trying to penetrate the NHS protective shield which seems to be designed to prevent me finding out anything useful. Link to comment Share on other sites More sharing options...
gingerjon Posted July 6, 2018 Share Posted July 6, 2018 ckn can probably cover 2 and 3 … are there CQC reports for point 1? Build a man a fire, and he'll be warm for a day. Set a man on fire, and he'll be warm for the rest of his life. (Terry Pratchett) Link to comment Share on other sites More sharing options...
Stevo Posted July 6, 2018 Share Posted July 6, 2018 2 hours ago, JohnM said: Update: I have an appointment last week in July with the Consultant Cardiologist at United Lincs Hospitals to " be reviewed urgently with consideration of work-up for mitral valve repair." Questions are, if anyone knows the answers 1. How do I find out if ULH are any good at this stuff - up to date info.? 2. How do I break out of the tram lines I'm stuck in so I can get the job done at Glenfield in Leicester or other such centre of excellence. 3. Planning to see my GP next week to see what he thinks, but it would be nice to take some supporting evidence with me. If you've noticed the Internet slowing down recently, it's because I have been using it in trying to penetrate the NHS protective shield which seems to be designed to prevent me finding out anything useful. Wotcher. 1. Have a starting look here - see if you can refine to the specific location/ clinic. If you know the name of the surgeon who would do the operation then in theory you can look up stats related to their individual performance for their clinic (better than expected; as expected; worse than expected). NB - the stats calculation on those are highly waited in favour of not embarrassing particular consultants. There is a very high level of statistical confidence needed before a consultant will show up as having a higher-than-expected level of deaths 2. For most people in England there is a right to choose where you receive treatment - any urgency of need versus availability of first choice will need to be considered. Your GP should be able to help/ advise on this. It may be that as you've already been referred to one consultant, you cannot now reconsider that choice (even if you didn't at the time realise you were making a choice - though see next bit below) 3. Good luck! Despite the cliché, you don't have a right to a second opinion - though if you're really unhappy with what your consultant is suggesting and/ or their reputation in the field, you can request one and most consultants who give a damn will be happy for you to get an alternative view. They are likely to need to refer you on though, so again if time / urgency is an issue this may not be an avenue. As ever, prepare for your GP appointment and be clear what you want to get out of it. Ask awkward questions, especially if you see that there are different possible treatments for your diagnosis. Hope things work out and you are up and about soon. It's not a question of coming down to earth, Mr Duxbury. Some of us, Mr Duxbury, belong in the stars. Link to comment Share on other sites More sharing options...
JohnM Posted July 6, 2018 Author Share Posted July 6, 2018 Thanks for that Stevo. V. useful. Link to comment Share on other sites More sharing options...
ckn Posted July 6, 2018 Share Posted July 6, 2018 2 hours ago, Stevo said: Wotcher. 1. Have a starting look here - see if you can refine to the specific location/ clinic. If you know the name of the surgeon who would do the operation then in theory you can look up stats related to their individual performance for their clinic (better than expected; as expected; worse than expected). NB - the stats calculation on those are highly waited in favour of not embarrassing particular consultants. There is a very high level of statistical confidence needed before a consultant will show up as having a higher-than-expected level of deaths 2. For most people in England there is a right to choose where you receive treatment - any urgency of need versus availability of first choice will need to be considered. Your GP should be able to help/ advise on this. It may be that as you've already been referred to one consultant, you cannot now reconsider that choice (even if you didn't at the time realise you were making a choice - though see next bit below) 3. Good luck! Despite the cliché, you don't have a right to a second opinion - though if you're really unhappy with what your consultant is suggesting and/ or their reputation in the field, you can request one and most consultants who give a damn will be happy for you to get an alternative view. They are likely to need to refer you on though, so again if time / urgency is an issue this may not be an avenue. As ever, prepare for your GP appointment and be clear what you want to get out of it. Ask awkward questions, especially if you see that there are different possible treatments for your diagnosis. Hope things work out and you are up and about soon. I can’t better that answer. The only thing I can add is to start talking to them now about post-op care. You can start piecing together the stuff you’ll need and the different NHS services who will deliver it. You can then start with your patient choice stuff and planning for timescales. "When in deadly danger, when beset by doubt; run in little circles, wave your arms and shout" Link to comment Share on other sites More sharing options...
JohnM Posted July 6, 2018 Author Share Posted July 6, 2018 Should add that I'm not unhappy with what's been done so far. However, because I was taken by ambulance to A and E to Boston, I now seem locked into United Lincs Hospital who don't have a good reputation overall. It's just that I'm quite ambitious to be around, posting on here post-surgery. Will aim to talk it through with the GP next week. Link to comment Share on other sites More sharing options...
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