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13 minutes ago, Wolford6 said:

My mother had it and had a private operation to fit a new plastic lens that dispersed light onto other parts of the retina. It didn't work for her, but she was in her eighties and the  doctor who pushed it hasn't got the greatest reputation.

However, you might investigate the process with a public-service eye doctor.

I’m not at a stage where it’s a day to day problem however I’ve been told what’s to come. I’m hoping that it progresses slow enough to allow for new treatment/management processes to develop in the meantime.

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7 hours ago, Copa said:

Well .... not long came back from my eye check and the different tests all picked up the very early signs of macular degeneration.

I’m mid 40s so it’s quite a shock.

I’m not particularly excited about the idea of slowly going blind.

 That's awful news. I'm not surprised you "zoned out". I don't know how I would handle such a diagnosis.

I hope the scientists can develop a cure or, at least a treatment for you. Good luck.

Rethymno Rugby League Appreciation Society

Founder (and, so far, only) member.

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2 hours ago, Robin Evans said:

i now have to go get my walnut felt up

So not all bad news then.

Build a man a fire, and he'll be warm for a day. Set a man on fire, and he'll be warm for the rest of his life. (Terry Pratchett)

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2 hours ago, Copa said:

I’m not at a stage where it’s a day to day problem however I’ve been told what’s to come. I’m hoping that it progresses slow enough to allow for new treatment/management processes to develop in the meantime.

Good luck with it all. You're always welcome to scream on here.

Build a man a fire, and he'll be warm for a day. Set a man on fire, and he'll be warm for the rest of his life. (Terry Pratchett)

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  • 5 months later...

How's everyone doing? Anyone tested positive for Covid 19 and can tell the tale? 

Cardiologist reported the other day that an echocardiogram revealed that the replacement heart valve was functioning well, but also other valve leaking a bit and I have chronic heart failure and permanent AF (however, I wont be leaving you quite yet, it seems) , the effects of which are  being treated by multiple medication. One medication in particular has worked wonders in lowering my blood pressure, reducing fluid retention...too low in fact and the side effects are quite debilitating so that is being changed.    next up: x-ray prior to going on hip replacement waiting list.

 

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12 minutes ago, JohnM said:

How's everyone doing? Anyone tested positive for Covid 19 and can tell the tale? 

Cardiologist reported the other day that an echocardiogram revealed that the replacement heart valve was functioning well, but also other valve leaking a bit and I have chronic heart failure and permanent AF (however, I wont be leaving you quite yet, it seems) , the effects of which are  being treated by multiple medication. One medication in particular has worked wonders in lowering my blood pressure, reducing fluid retention...too low in fact and the side effects are quite debilitating so that is being changed.    next up: x-ray prior to going on hip replacement waiting list.

 

Good to hear that you're getting the right treatment.

The family Ginger seem to be mostly healthy at the minute. Long may that continue.

Build a man a fire, and he'll be warm for a day. Set a man on fire, and he'll be warm for the rest of his life. (Terry Pratchett)

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14 minutes ago, JohnM said:

once you both tested positive, were you treated in any way or did you just stay home?

Just phone calls at home from a specialist team offering an assessment, some advice around maintaining calorie intake (COVID-19 left us both without appetite) and trying vitamin C and D supplements.  Also to sit upright despite feelings of tiredness.

More importantly they were firm that we should contact them straight away if there was a deterioration in condition such as breathing.  It was made clear that at that point there would be hospital treatment.

The actual Track and Trace aspect was the expected muddle at first, but in the end we both spoke separately to helpful people and finalised the details.

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23 minutes ago, JohnM said:

Just one more question if you don't mind. Did you ever get to find or suspect when, where or how you might have caught it?

The suspicion is my father caught it either at Manchester Eye Hospital while waiting for a critical appointment, or en route there or while waiting to come back.

Its obviously difficult to be precise, but that’s the working assumption.

Unfortunately unwittingly he spread it to myself later before becoming fully symptomatic, but was able to contain it from there and so was I due to work from home obligations.

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She was at school last on Fri 4th as last week her year group was rostered off due to staff shortages.

Late on Wed 9th whilst at her rugby training we found out one of thr girls she had spent significant time with on the 4th had developed a fever on Mon 7th and been for a test on the 8th with  positive result late on the 9th.

By the time we got back from her training my wife was saying she was feeling cold, by midnight she had a fever which she kept all night. The following day she booked a test at the local drive in and as it allowed to add up to 3 household members she added my daughter and I (although we were actually both asypmtomatic at the time so had to bend the truth), tested 1.30pm on 10th we got notified 5am on Friday 11th all 3 positive

Rang her school to inform them and were told they would do nothing - PHE will only allow them to go back 48hrs so as the girl she almost def got it from didnt get symptoms until the Monday they didnt bother telling her contacts from the Friday.

Unfortunately I had been to training on Tuesday night for the first itme in well over a month at 1 club and her wed at another, so 12 adults and 10 girls are now self isolating due to that

I started to feel muddle headed and spacey yesterday and I had a fever last night - wife has a steady fever and no cough but i am starting to get a bit of a throat tickle.

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1 hour ago, JohnM said:

once you both tested positive, were you treated in any way or did you just stay home?

From our side wife has taken paracetemol and ibuprofen to control fever

I have taken nothing just given up alcohol (didnt really want any anway but decided it would make sense to do nothing to stress the system)

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3 hours ago, JohnM said:

How's everyone doing? Anyone tested positive for Covid 19 and can tell the tale? 

Cardiologist reported the other day that an echocardiogram revealed that the replacement heart valve was functioning well, but also other valve leaking a bit and I have chronic heart failure and permanent AF (however, I wont be leaving you quite yet, it seems) , the effects of which are  being treated by multiple medication. One medication in particular has worked wonders in lowering my blood pressure, reducing fluid retention...too low in fact and the side effects are quite debilitating so that is being changed.    next up: x-ray prior to going on hip replacement waiting list.

 

The WWD household consists of just three adults; there are Mrs WWD and I, and our son (in his thirties, but we still cannot get rid of him!)

Our son woke up one morning in early November, got up for work, dressed, brushed his teeth...and realised he couldn't taste the toothpaste.  So not off to work, but to Salisbury testing station instead.  next day - positive result!  So he must isolate at home, but so must Mrs WWD and I.  In a modestly sized, three-bedroomed house where one person has the dreaded bug, do you think it is realistically possible to avoid transmission?  No, neither did we, and in due course we both tested positive.

Happily (if that's the right word) none of us needed hospital treatment.  Our son was most under the weather when he had it and my wife the least.  I was pretty much OK until I developed the dry cough quite late in the ten days isolation.  It lingered on and has only disappeared quite recently, but, luckily, it is not a reason to prolong your isolation.  

With the benefit of hindsight, I can see that I was a bit impatient and naive, in that I equated in my mind the end of isolation with being better.  Not so, and for a few days after my isolation ended, I tried to do too much and ended up having a late afternoon nap, as I was so knackered!

NHS Test & Trace were awful.  I had no contact until teatime on 15th November, one day from the end of my isolation period, which, in accordance with government guidance and regulations, I was measuring from the onset of a discernible symptom, which for was on the 6th (the 7th for Mrs WWD).  Then I was phoned.  I readily gave details of my age, gender and ethnicity, as I understand the need for research on whether particular groups, however measured, are unduly vulnerable.  I was asked how I was coping and did I need help.  Then the crunch; I should isolate until the 20th.  Why?  I displayed symptoms on the 6th and, indeed, was already in isolation then.  Good points which were accepted and the follow up email confirmed that I had to isolate until the 16th.

Less than 24 hours later, on the morning of the 16th, another T&T phone call!  Could they begin by asking about my ethnicity, age, etc?  Well, no, as these hadn't changed since yesterday teatime.  Same sort of call concluding that I must isolate until the 20th.  No, I say, it's until today, the 16th.  Oh yes, accepted...until the follow-up email came, when it still said the 20th!

So I am the proud possessor of two T&T emails giving me different dates to which I must self isolate.  Incidentally, in each email I had a different 'account number'.  Do they think I am two different people?  If so, that raises a very interesting question, at the national level, about the number of people with whom they think and claim to have made contact!

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  • 4 months later...
On 01/07/2020 at 10:42, Robin Evans said:

Jeez....

Got the dribbles when I want the lav so called doc.

Any new backpain? Well yes as it happens.

Groin sore? No, but it itches something rotten.

Leg swellings.... yes... to my left leg....

So.... i now have to go get my walnut felt up and have my PSA levels done on Monday. I'm in hyperpanic mode.....

Was this OK?

"You clearly have never met Bob8 then, he's like a veritable Bryan Ferry of RL." - Johnoco 19 Jul 2014

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16 minutes ago, Bob8 said:

Was this OK?

A long story.... I'll shorten it.

Had MRI scan but didn't have a face to face with urology. Prescribed meds which fixed the urinary symptoms ... urgency n dribbles etc.

However, back pain now significantly worse where even weight bearing at times is painful.

So 9 months on I'm now referred to musculoskeletal and having my psa (prostate cancer) bloods done yet again before I go back to the doc for the james Heriot up me jacksie. 

It's frightening me if I'm honest.

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3 minutes ago, Robin Evans said:

A long story.... I'll shorten it.

Had MRI scan but didn't have a face to face with urology. Prescribed meds which fixed the urinary symptoms ... urgency n dribbles etc.

However, back pain now significantly worse where even weight bearing at times is painful.

So 9 months on I'm now referred to musculoskeletal and having my psa (prostate cancer) bloods done yet again before I go back to the doc for the james Heriot up me jacksie. 

It's frightening me if I'm honest.

Blinkin 'eck, sorry to hear all this.

Hope you at least find out what's going on soon.

And I'm told you can get some great drugs to help you cope with certain internal investigations these days.

Build a man a fire, and he'll be warm for a day. Set a man on fire, and he'll be warm for the rest of his life. (Terry Pratchett)

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54 minutes ago, Robin Evans said:

A long story.... I'll shorten it.

Had MRI scan but didn't have a face to face with urology. Prescribed meds which fixed the urinary symptoms ... urgency n dribbles etc.

However, back pain now significantly worse where even weight bearing at times is painful.

So 9 months on I'm now referred to musculoskeletal and having my psa (prostate cancer) bloods done yet again before I go back to the doc for the james Heriot up me jacksie. 

It's frightening me if I'm honest.

Crikey.

I assumed no news was good news, just thought I would check.

Horrible thing to be going through.

"You clearly have never met Bob8 then, he's like a veritable Bryan Ferry of RL." - Johnoco 19 Jul 2014

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1 hour ago, Robin Evans said:

A long story.... I'll shorten it.

Had MRI scan but didn't have a face to face with urology. Prescribed meds which fixed the urinary symptoms ... urgency n dribbles etc.

However, back pain now significantly worse where even weight bearing at times is painful.

So 9 months on I'm now referred to musculoskeletal and having my psa (prostate cancer) bloods done yet again before I go back to the doc for the james Heriot up me jacksie. 

It's frightening me if I'm honest.

I was going to give you a thumbs up.. but it didn't seem quite appropriate😎

But I do hope they get you sorted asap

Ron Banks

Midlands Hurricanes and Barrow

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21 hours ago, Robin Evans said:

Got to keep the humour going!! Life's too short mate. 😊

Good luck with the tests and treatment (or should I say 'ointment'?).

Take care, mate.

Rethymno Rugby League Appreciation Society

Founder (and, so far, only) member.

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