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Lounge Room Lizard

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Lounge Room Lizard

Lounge Room Lizard

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Just need to get this out. I have cancer as some know. Its not going to likely kill me in the next couple of years fortunately. But its wierd to carry this at 43 and having an 18 month old daughter, I am scared. There are cases of people living 25 years more after diagnoses of Myeloma Cancer. I still plan to coach Rugby League in future. We plan to build a house in the next 12 months. But being now classed as disabled and likely unable to work much makes me feel guilty. I am lucky that my wife and family are so great with it. Less than 12 months ago life was so different...

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Griff9of13

Griff9of13

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I've been there, a different form, mine was malignant melanoma. That was what will be 10 years in August since my diagnosis. I am very fortunate in that mine was identified and treated before it had any real opportunity to spread, although it did get as far as the lymph nodes in my right groin meaning they had to be whipped out. This has left me with a slight disability in that I now surfer from lymphedema and had several bouts of severe cellulitis as a result, but it is all under control now. I can empathise fully with your fears for the future; I felt exactly the same at first, that day I received the diagnosis and the subsequent (not great) prognosis really floored me. You really count the milestones, 3 months clear, 6 months clear, 1 year clear etc. I don't know that much about Myeloma specifically, but with cancer in general the longer you go without re-occurrence the better your long term prognosis. Hang in there and the best of luck for the future. 

"it is a well known fact that those people who most want to rule people are, ipso facto, those least suited to do it."

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Phil

Phil

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Thanks for your message today Si, you're a good bloke and I'm proud to have played alongside you even if it was only for 15 minutes or so ?

Obviously we're all thinking of you here 

"Freedom without socialism is privilege and injustice, socialism without freedom is slavery and brutality" - Mikhail Bakunin

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tonyXIII

tonyXIII

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And here's me, moaning about an arthritic hip!

Hope you stay clear and continue to enjoy life and your family. Good luck!

 

Rethymno Rugby League Appreciation Society

Founder (and, so far, only) member.

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Derwent

Derwent

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This is one of those occasions where you want to say something but don't quite know what to say. All you can do is stay strong and keep fighting, and deal with things one day at a time. Best of luck for a long and happy future.

I’m not prejudiced, I hate everybody equally

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Northern Eel

Northern Eel

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36 minutes ago, Derwent said:

This is one of those occasions where you want to say something but don't quite know what to say. All you can do is stay strong and keep fighting, and deal with things one day at a time. Best of luck for a long and happy future.

Absolutely right Derwent. We are collectively often divided in opinion on a range of issues on this forum, but one thing I know for certain is that we are all 100% behind each other when the really important matters in life take centre stage. Good luck LRL and if we can be of help just as a sounding board, please, use us all.

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moorside roughyed

moorside roughyed

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Good luck in your fight mate.I hope that you can still coach rugby league in future, you obviously enjoy it.Don't feel guilty about not being able to work, there are loads of people who don't work that should, obviously you have pride and that is fantastic and there are people where this lacks.You have your wife,daughter and family right behind you.I'm sure have the rugby league community behind you because in rugby league were all family as far as I'm concerned.

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Bob8

Bob8

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6 hours ago, Lounge Room Lizard said:

Just need to get this out. I have cancer as some know. Its not going to likely kill me in the next couple of years fortunately. But its wierd to carry this at 43 and having an 18 month old daughter, I am scared. There are cases of people living 25 years more after diagnoses of Myeloma Cancer. I still plan to coach Rugby League in future. We plan to build a house in the next 12 months. But being now classed as disabled and likely unable to work much makes me feel guilty. I am lucky that my wife and family are so great with it. Less than 12 months ago life was so different...

It feels odd replying here, when I know you.

You mention on Facebook how much a like counts, which is great because if you did not say that I would feel pathetic giving it. I should also mention it on here.  I am sure many people do not want to rely as it would feel a bit rubbish. But, it is good to know you appreciate any support.

God bless and good luck.

"You clearly have never met Bob8 then, he's like a veritable Bryan Ferry of RL." - Johnoco 19 Jul 2014

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Copa

Copa

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Devastating. 

Some words from someone who was the child of a parent who died aged 39 because of cancer.

Spend quality time with your child and ensure there are records of the great times so they can remember and hold those memories dear for the rest of their life. 

I was a child when my father passed and I don't even have a single photo of him and I together.

Fight hard and don't give up.

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Just Browny

Just Browny

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Probably fair to say we squabble more than we agree on here, but I am very sorry to hear this and I hope sharing it with the forum helps in some way.

There is better advice above than I could give, but I wish you and your loved ones all the best of luck in the fight ahead. I look forward to reading about you getting through the other side.

I can confirm 30+ less sales for Scotland vs Italy at Workington, after this afternoons test purchase for the Tonga match, £7.50 is extremely reasonable, however a £2.50 'delivery' fee for a walk in purchase is beyond taking the mickey, good luck with that, it's cheaper on the telly.

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gingerjon

gingerjon

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Echo everyone's comments on here.  Of course we all moan and whinge about each other and everything else on here all the time but I'm a firm believer in the rugby league family.  Fight it as much as you can, enjoy your life and your family, and if you ever need to vent about anything this is a pretty good place to do it.  All the best.

Build a man a fire, and he'll be warm for a day. Set a man on fire, and he'll be warm for the rest of his life. (Terry Pratchett)

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Scubby

Scubby

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Posted
21 hours ago, Lounge Room Lizard said:

Thank you everybody for words of support and comfort. Trying to stay positive in all this and know many worse of than me. Thanks again.

Stay strong fella. Keep positive vibes around you - it's important. That may mean staying away from any threads about Leigh for the time being.

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westlondonfan

westlondonfan

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My thoughts are with you Loung Room Lizard. My best friend had cancer and I can still remember the day he stopped at the bus stop in the morning in his car and gave me a lift towards work. He didn't have to say anything as I knew he had gone for a test. I just knew. His daughter was very young at that time too. I remember speaking to him on the phone in the middle of his treatment and he didn't sound good. Anyway he did make a full recovery. His son, who is now just starting at York University was born after the treatment and we are trying to complete the South West Coastal Path by doing one long weekend every year. Stay positive and never give up.

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Niels

Niels

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Best wishes LRL. I admire your positivity and honesty and I will try to put small problems in my life in perspective after reading it. 

Again, really heartening to see so many good wishes from posters here. 

 

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  • 10 months later...
Lounge Room Lizard

Lounge Room Lizard

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Received the news today the Cancer is back after just 10 months remission. I am in shock. There are meds I will probably go on, but wonder how long they will work etc. I have a couple of appointments now Arranged but very scared and wonder where we go from here. Angry, bitter, Frustrated and many questions and fears etc have been the Story for the past 12 months. I fear they will esculate. There are no answers really.

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ckn

ckn

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17 minutes ago, Lounge Room Lizard said:

Received the news today the Cancer is back after just 10 months remission. I am in shock. There are meds I will probably go on, but wonder how long they will work etc. I have a couple of appointments now Arranged but very scared and wonder where we go from here. Angry, bitter, Frustrated and many questions and fears etc have been the Story for the past 12 months. I fear they will esculate. There are no answers really.

Really sorry to hear that.

There's some very good help out there that your hospital and GP can help you access, if they haven't already.  The cancer charities can't help cure you but they can be a very effective voice of experience and will always listen to you.

Plus you have these forum threads to throw your frustration at!  I've found them invaluable, things I can't say on Facebook as my wife would see and see how much pressure I'm under which would make her feel guilty and so the circle starts.  It's nice having a pressure release rant to a lot of folk who barely know you!

"When in deadly danger, when beset by doubt; run in little circles, wave your arms and shout"

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Kayakman

Kayakman

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Hang in there Man and never give up...always keep paddlin even when the seas are rough....you just might work your way out of it!

Keep the faith and am pulling for you 1/2 way around the world!  Best wishes.

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gingerjon

gingerjon

Posted
Posted
4 hours ago, Lounge Room Lizard said:

Received the news today the Cancer is back after just 10 months remission. I am in shock. There are meds I will probably go on, but wonder how long they will work etc. I have a couple of appointments now Arranged but very scared and wonder where we go from here. Angry, bitter, Frustrated and many questions and fears etc have been the Story for the past 12 months. I fear they will esculate. There are no answers really.

I go back to what I said a few posts up. This place is a heck of a good place to vent sometimes and rugby league fans are a true family.

We could even open up the Sunday evening bar again.

Build a man a fire, and he'll be warm for a day. Set a man on fire, and he'll be warm for the rest of his life. (Terry Pratchett)

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